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May 20 2015   10:16AM GMT

The rise of patient-generated health data

Posted by: adelvecchio
Health Data Consortium, Health Datapalooza, Patient data, patient-generated data

booneGuest post by Chris Boone, Chief Executive Officer, Health Data Consortium

As the age of big health data emerges, a new category of data that can be leveraged by physicians and caregivers to discover more about their patients has arisen: patient-generated health data. While self-tracking — and the quantified self movement — is not a new phenomenon, the creation of technologies that can collect, store and analyze this data has given the movement new traction and momentum. With no one more interested in a successful health outcome than an individual with their own, patient-generated health data can provide clinicians a rich new vein of data to inform their decision-making.

A webinar hosted earlier this year entitled “Patient Generated Health Data: An Overview” brought together patient-advocate Scott Strange of Strangely Diabetic, Danny Sands, M.D., assistant professor at Harvard Medical School, Mandi Bishop, health plan analytics innovation practice lead for Dell, and Greg Meyer, director and distinguished engineer at Cerner Corp. They discussed the potential of leveraging patient-generated health data and data trends to improve and deliver integrated patient care, and what challenges lie ahead in achieving the reality of a comprehensive, person-centered view of an individual’s health.

This highly successful discussion will be continued at the session “Patient-Generated Health Data in the Real World” at Health Datapalooza 2015 with the same panelists and health cost transparency advocate Casey Quinlan as moderator. Other sessions that will discuss similar topics include “Leveraging the Potential of Patient-Generated Data: Progress and Opportunities,” to be moderated by Alison Rein, senior director for evidence generation and translation for AcademyHealth. “But What if I Want to Share? Contributing Your Own Data to Foster Public Good,” will be moderated by Niall Brennan, chief data officer for the Centers for Medicare and Medicaid Services. Another related session will be “Engaging Patients in Generating and Using Big Data,” along with many more.

Perhaps just as interesting as those sessions will be the ideas and collaborations generated from discussions between attendees about how to create integrated care through patient-generated health data. This year’s Health Datapalooza will continue to provide a forum for high-level cross-sector conversations between patients, providers, innovators and entrepreneurs, government, academics, and healthcare technologists.

To be a part of the conversation that will direct the potential of health data towards targeted and personalized healthcare, join us at Health Datapalooza from May 31-June 3 in Washington, D.C.

About the author:

Chris Boone is Chief Executive Officer of Health Data Consortium. He is a recognized expert in health systems, health informatics, health IT policy, and the use of electronic clinical data to generate clinical and scientific evidence for public policy, quality improvement, and patient-centered outcomes research efforts.

Prior to Health Data Consortium, Chris was a Vice President in Avalere Health’s Evidence Translation and Implementation practice, where he focused on developing evidence generation strategies for professional medical societies, consumer advocacy groups, and life sciences companies.

Chris holds a bachelor’s degree in Management Information Systems, a master’s degree in Healthcare Administration, and a doctorate in Public Affairs and Health Policy. Chris is also a fellow of the American College of Healthcare Executives (FACHE).

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